Hope For Aaliyah
Soon Aaliyah and her parents will be traveling from their home in Billings, Montana to Colorado Children’s Hospital for a series of tests related to her vein of Galen malformation. Although Aaliyah has had unspecified operations in the past, she is still experiencing seizures and heart problems. On November, 12, the Billings YMCA, where Aaliyah’s mother and stepfather both teach classes, will hold a fundraiser for the family. You can read more about Aaliyah here - http://www.kulr8.com/news/local/Hope-for-Aaliyah-133593793.html ...
Read MoreCNN Health Video – Dr. Berenstein Discusses Surgical Glue at TEDMED
This video from CNN Health shows Dr. Alejandro Berenstein giving a lecture at TEDMED 2010 about the practical and frankly amazing uses for surgical glue, a technique he helped develop to treat Vein of Galen malformation. The video, almost 15 minutes in length, illustrates how the delicate embolization procedure is performed, using tiny catheters threaded from the groin site up in to the arteries of the brain. Using MRI data and dramatic before and after pictures, Dr. Berenstein provides a detailed explanation of how this procedure can be used for VOGM treatment, as well as, other...
Read MoreSurgery Cancelled for Ella-Grace
After spending only 18 short hours in the United States, Ella-Grace and her family are returning home. Ella-Grace traveled from England to New York for what they hoped would be a final angioplasty and embolization procedure to close the remaining arteries leading to her vein of Galen malformation. Although the family reported she was fine when she boarded the plane, with just a bit of a cough, by the time she reached the hospital, she was diagnosed with a chest infection. Her VOGM condition is stable at this time and she is scheduled to return in the spring for the final...
Read MoreElla’s Long Journey
Yesterday, Ella Grace and her parents traveled from England to New York for what they hope to be her final embolization surgery. This will be the family’s 7th trip to the United States to treat Ella’s vein of Galen malformation. Before each procedure in New York, Ella’s family and supporters have already been hard at work in England raising funds for travel expenses and the highly specialized surgery required to treat her condition. The family typically spends a week in the hospital before they fly back to...
Read MoreFrom The Tool Box To The Doctor’s Bag
Happy News Online Happy News tells the story of Baby Sophia. Her VOGM was treated with medical Krazy Glue. http://www.happynews.com/news/12182008/doctors-use-krazy-glue-plug-hole-baby-head.htm
Read MoreThe Web Works in Mysterious Ways
Brain Aneurysm Online One of my favorite articles over the past few years. Little Bobby Wheeler’s worried parents needed answers fast and the internet came to their rescue. http://www.brainaneurysm.com/patientstory-wheeler.html
Read MoreSyndicate
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