Louis Trupia
Louis Trupia was born in London (UK) on 13 June 1996. He was a perfect baby, an absolute angel, but looking back now, all the signs were there that all was not well. From being a very healthy birth weight Louis soon dropped down two lines on his centile chart, and he slept most of the day. He hated to crawl but we taught him how, and he was walking at 11 months, although his balance wasn’t brilliant. He was very calm and quiet and didn’t speak, but he had ‘glue ear’ so it wasn’t surprising. By the age of two he wasn’t sleeping so much and was reaching all his milestones. However,...
Read MoreAlfie Dale
I found out that I was expecting identical twins at my 12 week scan and with no history of twins in our family this came as a very huge shock. Due to the complications that twin pregnancies can come with I was scanned again at 16 weeks and it was at this point it was discovered that I had a condition called Twin to Twin Transfusion which can put both babies life at risk depending on the severity. Initially mine was only thought to be mild but they made a decision to monitor/scan me regularly to keep a close eye on the babies. At 20 weeks we were told that we were expecting twin boys who we...
Read MoreRobert Dominguez
We are coming up on a year since our son, Robert, was diagnosed with a Vein of Galen Malformation (VOGM). As we approach the anniversary of his diagnosis, I’ve spent a lot of time thinking about the events of the past year, and trying to come up with productive ways to mark this milestone. Sharing our story, which is still being written, with other families who are currently facing or have faced the same diagnosis is one constructive way I feel we can mark this event. VOGM is such a rare condition that you can feel very alone as you navigate what little information there is on the...
Read MoreAnna Jo Wilkinson
Anna Jo Wilkinson was born on September 11, 2004. She weighed 7lbs. 10ozs. and was 19 1/2 inches long. There were no complications during pregnancy. When Anna was 3 days old she had a well baby check-up with Dr. Kinnane (Pediatrician) who detected a “louder than normal” heart murmur. Dr. Kinnane ordered a chest xray in the office to see what was going on. After reviewing the chest xray, Dr. Kinnane very calmly instructed us to check in to the hospital because the cardiologist could see Anna on her evening rounds. That night Dr. Battiste (Pediatric Cardiologist) looked for...
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